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  1. Response to the NIH Request for Information on Developing Consent Language for Future Use of Data and Biospecimens

    Response to the NIH “Request for Information on Developing Consent Language for Future Use of Data and Biospecimens”.

    Utility and useability of this resource

    Thanks for assembling this useful resource which will prove helpful for a wide range of investigators.

    Gaps or additional components that should be included

    The introduction …

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  2. Response to the Consultation on Proposed Revisions on the Tri-Agency Framework: Responsible Conduct of Research

    Response to the Panel on Responsible Conduct of Research’s “Consultation: RCR Framework (2016) – Proposed Revisions for Public Consultation”.

    Dear Panel on Responsible Conduct of Research:

    Thank you for consulting on the revisions to the framework on Responsible Conduct of Research. The proposed revisions seem sensible as do the set …

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  3. Response to the White House Office of Science and Technology Policy’s Request for Information on public access

    Response to the White House Office of Science and Technology Policy’s “Request for Information: Public Access to Peer-Reviewed Scholarly Publications, Data and Code Resulting From Federally Funded Research”.

    Dear Dr. Nichols,

    Thank you for requesting input on “Public Access to Peer-Reviewed Scholarly Publications, Data and Code Resulting From Federally …

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  4. Comments on the draft NIH Policy for Data Management and Sharing

    Response to the “Request for Public Comments on a DRAFT NIH Policy for Data Management and Sharing and Supplemental DRAFT Guidance”.

    Section I: Purpose

    There should be a presumption that all research data underlying a publication is shared at time of publication. The current language is weak and has statements …

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  5. Feedback on the New Frontiers in Research Fund Transformation Stream Framework

    Thank you for giving us early information about the upcoming NFRF Transformation competition and requesting feedback. I have the following suggestions on the framework:

    1. Having both “high risk” and “feasibility” be review criteria seems contradictory and is incredibly confusing for both applicants and reviewers. If by “high risk”, you actually …

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  6. Response to CIHR surveys, “What are your health research priorities?”

    My responses to the summer 2019 CIHR strategic consultation.

    How can CIHR have the biggest impact?

    CIHR has maintained a focus on four research priorities (i.e., Patient Improvements, Indigenous Health, Prevention, and Chronic Illness) to guide its strategic investments over the last ten years. What advice do you have …

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  7. Response to survey on intellectual property in the postsecondary education sector by the Ontario Ministry of Training, Colleges and Universities

    How can publicly assisted postsecondary education institutions and technology transfer offices better facilitate the creation and the commercialization of ideas and technologies?

    Universities and colleges exist, in part, to create and disseminate a public body of knowledge accessible to all. Today’s science and engineering research relies on the free …

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  8. Letter to Dean Beeby about CIHR travel expenses story

    To: Dean Beeby dean.beeby@cbc.ca

    Dear Mr. Beeby,

    I am writing about your story “Scrapping of ‘virtual’ meeting plan drives up travel and hospitality costs for federal health agency” <https://www.cbc.ca/news/politics/health-cihr-research-scientists-medical-expenses-travel-hospitality-philpott-1.4933405>.

    The article describes the system used before the return to face-to-face …

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  9. Feedback on the Draft CIHR Ethics Guidance for Developing Research Partnerships with Patients

    Consultation: http://www.cihr-irsc.gc.ca/e/51217.html Draft guidance: http://www.cihr-irsc.gc.ca/e/51226.html

    Does this guidance address sufficiently the important ethical concerns in establishing meaningful research partnerships between patients and researchers? Are the reflections helpful?

    The guidance is missing a major component: guidance on …

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  10. Feedback on the draft Tri-Agency Research Data Management Policy

    Dear research funding agencies,

    Thank you for the opportunity to comment on the Tri-Agency Research Data Management Policy. I welcome this timely effort to improve data management in Canadian research. Comments in individual areas you requested follow.

    Impact of the suggested requirements (in section 3) for researchers, research communities and …

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  11. Response to the Proposed Update to the NIH Genomic Data Sharing Policy’s Access Model for Genomic Summary Results

    I strongly support NIH’s effort to make genomic summary statistics more widely available. This is an unqualified good for lifesaving scientific research.

    I strongly oppose the proposal to lock summary statistics behind a click-through agreement. This will slow projects that might use these data, costing money and delaying scientific …

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  12. Letter to Chrystia Freeland on Genetic Non-Discrimination Bill (S-201)

    Dear Minister:

    I am one of your constituents in Toronto and write to you with my strong support for the Genetic Non-Discrimination Bill, S-201.

    I run a genomics research lab at Princess Margaret Cancer Centre. To prevent and better treat genomic diseases like cancer and congenital childhood diseases, we need …

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  13. Letter to Prime Minister Trudeau and Finance Minister Morneau on increasing biomedical research funding

    To: Justin Trudeau justin.trudeau@parl.gc.ca, Bill Morneau bill.morneau@parl.gc.ca Subject: Please increase biomedical research funding

    Dear Prime Minister and Minister Morneau:

    Like many in Canada, I welcome and applaud your ministry’s improvements in science policy so far. I am writing to request that …

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