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  1. Response to the NIH Request for Information on Developing Consent Language for Future Use of Data and Biospecimens

    Response to the NIH “Request for Information on Developing Consent Language for Future Use of Data and Biospecimens”.

    Utility and useability of this resource

    Thanks for assembling this useful resource which will prove helpful for a wide range of investigators.

    Gaps or additional components that should be included

    The introduction …

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  2. Comments on the draft NIH Policy for Data Management and Sharing

    Response to the “Request for Public Comments on a DRAFT NIH Policy for Data Management and Sharing and Supplemental DRAFT Guidance”.

    Section I: Purpose

    There should be a presumption that all research data underlying a publication is shared at time of publication. The current language is weak and has statements …

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  3. Response to the Proposed Update to the NIH Genomic Data Sharing Policy’s Access Model for Genomic Summary Results

    I strongly support NIH’s effort to make genomic summary statistics more widely available. This is an unqualified good for lifesaving scientific research.

    I strongly oppose the proposal to lock summary statistics behind a click-through agreement. This will slow projects that might use these data, costing money and delaying scientific …

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