I led the drafting of a Global Alliance for Genomics and Health response to the NIH “Request for Information on Proposed Updates and Long-Term Considerations for the NIH Genomic Data Sharing Policy”.
See the full response as a PDF.
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Response to the NIH Request for Information on Developing Consent Language for Future Use of Data and Biospecimens
Response to the NIH “Request for Information on Developing Consent Language for Future Use of Data and Biospecimens”.
Utility and useability of this resource
Thanks for assembling this useful resource which will prove helpful for a wide range of investigators.
Gaps or additional components that should be included
The introduction …
read moreResponse to the Consultation on Proposed Revisions on the Tri-Agency Framework: Responsible Conduct of Research
Response to the Panel on Responsible Conduct of Research’s “Consultation: RCR Framework (2016) – Proposed Revisions for Public Consultation”.
Dear Panel on Responsible Conduct of Research:
Thank you for consulting on the revisions to the framework on Responsible Conduct of Research. The proposed revisions seem sensible as do the set …
read moreResponse to the White House Office of Science and Technology Policy’s Request for Information on public access
Response to the White House Office of Science and Technology Policy’s “Request for Information: Public Access to Peer-Reviewed Scholarly Publications, Data and Code Resulting From Federally Funded Research”.
Dear Dr. Nichols,
Thank you for requesting input on “Public Access to Peer-Reviewed Scholarly Publications, Data and Code Resulting From Federally …
read moreComments on the draft NIH Policy for Data Management and Sharing
Response to the “Request for Public Comments on a DRAFT NIH Policy for Data Management and Sharing and Supplemental DRAFT Guidance”.
Section I: Purpose
There should be a presumption that all research data underlying a publication is shared at time of publication. The current language is weak and has statements …
read moreFeedback on the New Frontiers in Research Fund Transformation Stream Framework
Thank you for giving us early information about the upcoming NFRF Transformation competition and requesting feedback. I have the following suggestions on the framework:
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Having both “high risk” and “feasibility” be review criteria seems contradictory and is incredibly confusing for both applicants and reviewers. If by “high risk”, you actually …
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Response to CIHR surveys, “What are your health research priorities?”
My responses to the summer 2019 CIHR strategic consultation.
How can CIHR have the biggest impact?
read moreCIHR has maintained a focus on four research priorities (i.e., Patient Improvements, Indigenous Health, Prevention, and Chronic Illness) to guide its strategic investments over the last ten years. What advice do you have …
The Haldane Principle and Canada
Interview on the Haldane Principle
read moreResponse to survey on intellectual property in the postsecondary education sector by the Ontario Ministry of Training, Colleges and Universities
How can publicly assisted postsecondary education institutions and technology transfer offices better facilitate the creation and the commercialization of ideas and technologies?
Universities and colleges exist, in part, to create and disseminate a public body of knowledge accessible to all. Today’s science and engineering research relies on the free …
read moreLetter to Dean Beeby about CIHR travel expenses story
To: Dean Beeby dean.beeby@cbc.ca
Dear Mr. Beeby,
I am writing about your story “Scrapping of ‘virtual’ meeting plan drives up travel and hospitality costs for federal health agency” <https://www.cbc.ca/news/politics/health-cihr-research-scientists-medical-expenses-travel-hospitality-philpott-1.4933405>.
The article describes the system used before the return to face-to-face …
read moreFeedback on the Draft CIHR Ethics Guidance for Developing Research Partnerships with Patients
Consultation: http://www.cihr-irsc.gc.ca/e/51217.html Draft guidance: http://www.cihr-irsc.gc.ca/e/51226.html
Does this guidance address sufficiently the important ethical concerns in establishing meaningful research partnerships between patients and researchers? Are the reflections helpful?
The guidance is missing a major component: guidance on …
read moreFeedback on the draft Tri-Agency Research Data Management Policy
Dear research funding agencies,
Thank you for the opportunity to comment on the Tri-Agency Research Data Management Policy. I welcome this timely effort to improve data management in Canadian research. Comments in individual areas you requested follow.
Impact of the suggested requirements (in section 3) for researchers, research communities and …
read moreResponse to the Proposed Update to the NIH Genomic Data Sharing Policy’s Access Model for Genomic Summary Results
I strongly support NIH’s effort to make genomic summary statistics more widely available. This is an unqualified good for lifesaving scientific research.
I strongly oppose the proposal to lock summary statistics behind a click-through agreement. This will slow projects that might use these data, costing money and delaying scientific …
read moreLetter to Chrystia Freeland on Genetic Non-Discrimination Bill (S-201)
Dear Minister:
I am one of your constituents in Toronto and write to you with my strong support for the Genetic Non-Discrimination Bill, S-201.
I run a genomics research lab at Princess Margaret Cancer Centre. To prevent and better treat genomic diseases like cancer and congenital childhood diseases, we need …
read moreLetter to Prime Minister Trudeau and Finance Minister Morneau on increasing biomedical research funding
To: Justin Trudeau justin.trudeau@parl.gc.ca, Bill Morneau bill.morneau@parl.gc.ca Subject: Please increase biomedical research funding
Dear Prime Minister and Minister Morneau:
Like many in Canada, I welcome and applaud your ministry’s improvements in science policy so far. I am writing to request that …
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