I led the drafting of a Global Alliance for Genomics and Health response to the NIH “Request for Information on Proposed Updates and Long-Term Considerations for the NIH Genomic Data Sharing Policy”.
See the full response as a PDF.
read moreI led the drafting of a Global Alliance for Genomics and Health response to the NIH “Request for Information on Proposed Updates and Long-Term Considerations for the NIH Genomic Data Sharing Policy”.
See the full response as a PDF.
read moreResponse to the NIH “Request for Information on Developing Consent Language for Future Use of Data and Biospecimens”.
Thanks for assembling this useful resource which will prove helpful for a wide range of investigators.
The introduction …
read moreResponse to the Panel on Responsible Conduct of Research’s “Consultation: RCR Framework (2016) – Proposed Revisions for Public Consultation”.
Dear Panel on Responsible Conduct of Research:
Thank you for consulting on the revisions to the framework on Responsible Conduct of Research. The proposed revisions seem sensible as do the set …
read moreResponse to the White House Office of Science and Technology Policy’s “Request for Information: Public Access to Peer-Reviewed Scholarly Publications, Data and Code Resulting From Federally Funded Research”.
Dear Dr. Nichols,
Thank you for requesting input on “Public Access to Peer-Reviewed Scholarly Publications, Data and Code Resulting From Federally …
read moreResponse to the “Request for Public Comments on a DRAFT NIH Policy for Data Management and Sharing and Supplemental DRAFT Guidance”.
There should be a presumption that all research data underlying a publication is shared at time of publication. The current language is weak and has statements …
read moreThank you for giving us early information about the upcoming NFRF Transformation competition and requesting feedback. I have the following suggestions on the framework:
Having both “high risk” and “feasibility” be review criteria seems contradictory and is incredibly confusing for both applicants and reviewers. If by “high risk”, you actually …
My responses to the summer 2019 CIHR strategic consultation.
read moreCIHR has maintained a focus on four research priorities (i.e., Patient Improvements, Indigenous Health, Prevention, and Chronic Illness) to guide its strategic investments over the last ten years. What advice do you have …
Interview on the Haldane Principle
read moreHow can publicly assisted postsecondary education institutions and technology transfer offices better facilitate the creation and the commercialization of ideas and technologies?
Universities and colleges exist, in part, to create and disseminate a public body of knowledge accessible to all. Today’s science and engineering research relies on the free …
read moreTo: Dean Beeby dean.beeby@cbc.ca
Dear Mr. Beeby,
I am writing about your story “Scrapping of ‘virtual’ meeting plan drives up travel and hospitality costs for federal health agency” <https://www.cbc.ca/news/politics/health-cihr-research-scientists-medical-expenses-travel-hospitality-philpott-1.4933405>.
The article describes the system used before the return to face-to-face …
read moreConsultation: http://www.cihr-irsc.gc.ca/e/51217.html Draft guidance: http://www.cihr-irsc.gc.ca/e/51226.html
Does this guidance address sufficiently the important ethical concerns in establishing meaningful research partnerships between patients and researchers? Are the reflections helpful?
The guidance is missing a major component: guidance on …
read moreDear research funding agencies,
Thank you for the opportunity to comment on the Tri-Agency Research Data Management Policy. I welcome this timely effort to improve data management in Canadian research. Comments in individual areas you requested follow.
Impact of the suggested requirements (in section 3) for researchers, research communities and …
read moreI strongly support NIH’s effort to make genomic summary statistics more widely available. This is an unqualified good for lifesaving scientific research.
I strongly oppose the proposal to lock summary statistics behind a click-through agreement. This will slow projects that might use these data, costing money and delaying scientific …
read moreDear Minister:
I am one of your constituents in Toronto and write to you with my strong support for the Genetic Non-Discrimination Bill, S-201.
I run a genomics research lab at Princess Margaret Cancer Centre. To prevent and better treat genomic diseases like cancer and congenital childhood diseases, we need …
read moreDear Minister:
I am one of your constituents in Toronto and write to you about my concern on bill C-23, which expands the power of U.S. preclearance officers in Canada.
In the past few weeks, the Trump administration has proven its desire and ability to abuse its border control …
read moreTo: Justin Trudeau justin.trudeau@parl.gc.ca, Bill Morneau bill.morneau@parl.gc.ca Subject: Please increase biomedical research funding
Dear Prime Minister and Minister Morneau:
Like many in Canada, I welcome and applaud your ministry’s improvements in science policy so far. I am writing to request that …
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